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26/02/2008, 18:17 Nickel Joined on 02/10/2007 Lot Posts 186 Re: No health cover Hello Coops ALD 9 Forme grave d'une affection neuromusculaire It does specify "severe" epilepsy - as far as I can gather they (HAS) are in the process ( may have completed) of issuing guidlines to doctors I'll try and find out more. Could you add it to the ALD list on your Health Issue site?just as another heading under ALD 9- I am sure more will be added over time.   It's not dark yet ......but it's getting there.    Report

26/02/2008, 18:25 cooperlola Joined on 05/05/2006 72 - Sarthe - home of les 24 heures du Mans Posts 6,554 Re: No health cover Thanks for that.  Yes, we will add it. Healthcare Issues Site    Report

26/02/2008, 19:35 Keni Joined on 23/08/2004 Haute Vienne/Worcs Posts 238 Re: No health cover Thank you Cooperlola and Nickel I am not sure about the 'grave' epilepsy - to us you have it or not. It is meant to be controlled by meds, but we have a monthly series of episodes, and each time we visit the hospital they seem to up the meds. I do not know about the incapacity benefit thing, as we try to just get by without hassling anybody. We registered with the DSS for herself, purely because we knew when she left school, the meds might cost a fortune. She is on a Disability Living Allowance and she has the middle rate care component and lower rate mobility component. Does this make sense to anybody? Thank you again Smile - you don't know who's watching!    Report

26/02/2008, 19:39 cooperlola Joined on 05/05/2006 72 - Sarthe - home of les 24 heures du Mans Posts 6,554 Re: No health cover This is where we need Tony F and co!  He is well up to speed with the new regulations on the transfer-ability of DLA and its implications vis a vis cover here which is the subject of some complicated high-level discussions and legal issues.  Once again, all this info' helps and I'm sure it strengthens your case.  I will continue to dig.. IMO, we all pay our taxes and social security etc to help those in need, because one day, it might be us - and it's just good luck if it never is.  Never be afraid to seek the state help which is due to you and your family. This is what I hope I am paying for! Healthcare Issues Site    Report

26/02/2008, 20:12 Nickel Joined on 02/10/2007 Lot Posts 186 Re: No health cover Severe partial complex seizures - Crises partielles complexes. The "severity" for ALD exemption is ascertained by         the number/:frequency/ severity of the seizures medical treatment required to "control" the seizures (mono or poly therapy) social consequences  - ability for working/driving/sports etc  "grave" just translates as "severity" as you know some forms of epilepsy are more severe than others. Exemption is gained for "epilepsie grave" under ALD 9. It seems likely that  your daughter would be in this category I hope that is of some help.         It's not dark yet ......but it's getting there.    Report

26/02/2008, 20:20 Keni Joined on 23/08/2004 Haute Vienne/Worcs Posts 238 Re: No health cover Thank you Nickel She is on the two meds mentioned earlier, the Keppra was increased at the beginning of February to try and control said fits. I will contact DSS tomorrow to find out more about what is classified as severe etc overhere. Thank you Smile - you don't know who's watching!    Report

26/02/2008, 22:53 ebaynut Joined on 06/03/2007 Posts 135 Re: No health cover Keni, As I understand it, if either you or your partner are carers, you ought to elligible for 'Carers Allowance', (I think the criteria is equal to 35 hours per week - but don't quote me on that), which is one of the conditions curently under review for exportation throught the ECJ decision, which 'should' also lead to qualification for an E121. The DWP site statement says: European Court of Justice ruling On 18 October the European Court of Justice gave a judgment which deals with whether Disability Living Allowance (care component only), Attendance Allowance, and Carer’s Allowance should be paid to people who move from within the UK to live in another country within the European Economic Area. It is not yet clear what this will mean for recipients of the affected benefits. We expect to provide full details on eligibility criteria by 5 April 2008. First payments could be made to eligible customers shortly afterwards.   You can find out more about Carers Allowance 'here' And 'this' gives more info for Disability Living Allowance. I don't think your daughter will qualify for Incapacity Benefit I'm afraid, unless she has paid NI contributions for the last two years. Check with DWP about this. Hope this helps.    Report

27/02/2008, 11:33 Keni Joined on 23/08/2004 Haute Vienne/Worcs Posts 238 Re: No health cover Thank you ebaynut, I have looked up the information and will proceed further. Part of the problem I perceive in this country, as with most allowances, be they medical or for the elderly is the on-going proof business. i can well understand the requirements, but it does wear you down and i can see why many of our elderly do not claim what they are entitled to simply because it is the same thing again and again. Mind you, that should be a good proving ground for moving to France I feel. They DSS can see from our daughter's records she has epilepsy and I often feel they require her to have a fit in front of them to prove she is epileptic, if you know what I mean. Still, I'm a dab hand at filling in forms for her these days.   Smile - you don't know who's watching!    Report

27/02/2008, 14:17 ebaynut Joined on 06/03/2007 Posts 135 Re: No health cover Keni, I believe they will contact your daughter's doctor with a form for him to fill in, and probably any hospital specialists who are treating her. But, I believe that epilepsy is a condition which is considered lifelong, although manageble with medication. (Much the same as diabetes or high blood pressure for instance). This would therefore continue to be accepted even with periodical re-assessment, and should in theory 'almost' guarantee continued qualification. Her qualification regarding DLA rests with whether the middle rate will be sufficient for exportation, and therefore an E121, but I believe that so long as it includes the 'care element' it should suffice. We are all waiting on what their decision will mean in terms of whether it will achieve an E121, but having spoken with someone at DWP it was their own interpretation that it would have to be treated just the same as Incapacity Benefit, which does qualify for exportation and an E121. (They also suggested that it could also include the mobility element at some future stage). I would advise that if you are not already claiming Carers Allowance, you should do so immediately. There are thousands and thousands of people who care for people in the UK who do not even realise that they could be eligible for this benefit, and subsequently do not claim.  I am sending you a pm.    Report

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